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Foundations related to life with epilepsy
Epilepsy Foundation
The Epilepsy Foundation, in collaboration with our community and network partners, connects the people, data and resources needed to address challenging health problems associated with seizures and the epilepsy - and promotes education, policy, research and systemic change that will foster measurable and sustainable improvement for all people living with epilepsy.
LGS Foundation
The Lennox-Gastaut Syndrome (LGS) Foundation Is A Nonprofit Organization Dedicated To Improving The Lives Of Individuals Impacted By LGS Through Advancing Research, Awareness, Education, And Family Support .
Infantile Spasms Foundation
Their mission is to serve as a collaborative center of education, resources, and support for children and their families living with neurologic conditions, and facilitate connection with medical professionals who care for them
Congenital Disorders of Glycosylation Foundation
Our mission is to promote greater awareness and understanding of CDG, to provide information and support to families affected by CDG, and to advocate for and fund scientific research to advance the diagnosis and treatment of CDG.
Dravet Foundation
The mission of Dravet Syndrome Foundation (DSF) is to aggressively raise funds for Dravet syndrome and related epilepsies; to support and fund research; increase awareness; and to provide support to affected individuals and families.
Charlie Foundation
Hundreds of studies have been published showing therapeutic benefits of the Ketogenic Diet for a variety of diseases. Originally studied for its effects on epilepsy. The diet is now showing promise for a multitude of illnesses that have an underlying metabolic element.
United Cerebral Palsy Foundation
To be the indispensable resource for individuals with cerebral palsy and other disabilities, their families, and their communities.
NAPA Kids Foundation
In the spirit of hope, courage and caring, NAPA Center Kids Foundation was created to provide financial assistance for children with disabilities.
Funds provide access to participation in innovative therapies, equipment needs, and support integration into the community. NAPA Center Kids Foundation offers educational programs to serve both caregivers and community practitioners. We serve as a vehicle to support awareness and outreach on pediatric disability.
Make A Wish Foundation
A wish experience can be a game-changer for a child with a critical illness. This one belief guides us in everything we do at Make-A-Wish. It inspires us to grant life-changing wishes for children going through so much. It compels us to be creative in exceeding the expectations of every wish kid. It drives us to make our donated resources go as far as possible. Most of all, it's the founding principle of our vision to grant the wish of every eligible child.
There are other wish granting organizations if MAW doesn't fit your child's diagnosis or location.
Danny Did Foundation
Founded by Chicagoans Mike and Mariann Stanton in 2010 after the death of their four-year-old son Danny, the Danny Did Foundation works toward its mission to prevent deaths caused by seizures with these main goals in mind: advancing public awareness of Sudden Unexpected Death in Epilepsy (SUDEP), enhancing SUDEP education and disclosure between medical professionals and families afflicted by seizures, and the mainstreaming of seizure detection and prediction devices that may assist in preventing seizure-related deaths.
More Foundations Coming Soon
Have a foundation you would like to add to our list? Send it to hello@LearningGiraffe.com
