This is Gianna. She was diagnosed with a rare metabolic disorder, CDG1k (Congenital Disorders of Glycosylation) - a disorder that comes with a very serious prognosis, shortly after birth. It is known to cause global delays, as well as severe epilepsy. Due this disorder, Gianna has severe intractable epilepsy. She was having over a thousand drop seizures a day. In August of 2014, she was sponsored by 420 Central, a cannabis dispensary in Orange County, California and her mom started her on a CBD oil. Within a few months her family noticed cognition improvement, but she was still having between 60-150 drop seizures an hour. In December 2014, THC was added to Gianna's medical regime and her drop seizures decreased to 2-15 an hour. Currently she is on 3 cannabis oils and is dramatically progressing showing a 90% seizure decrease from the oils - going from 150 drops an hour to 10 a hour! Her last EEG didn't show seizure activity. Her cognition and awareness of her surroundings have improved dramatically and she is starting to be more vocal and forming
words to talk.
This brave little girl still lives with seizures daily which, until they are stopped, will always effect the level of progress she
can make. To read more about her story please visit to
her YouTube and follow Natalie and Gianna's story on Instagram @Seizures_Suck
Gianna and her mom inspire strength, perseverance and hope to everyone they meet.
By the age of one, Levi was diagnosed with two forms of drug resistant and catastrophic seizure disorders - infantile spasms and Lennox Gastault Syndrome (LGS). This little warrior faces an uphill battle everyday, but he is a fighter and never gives up.
Besides diets, cannabis oils and other types of therapies, Levi has tried over 20 pharmaceutical anti-epileptic drugs. None of it has helped stopped his seizures. This happens with 30% of children with drug resistant or intractable epilepsy.
The reality is not every story is a success story for children with epilepsy. Jennifer continuous to advocate for a cure for epilepsy .
Follow Jennifer and Levi's story on Instagram @ SeizuresSuck
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