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Let's heal epilepsy together
Meet Levi and Gianna, two of the half a million children who suffer from epilepsy in America.
Welcome
We are two moms of children with epilepsy
and other complex medical needs.
We created this website as a starting place for anyone looking for information about epilepsy and seizure disorders.
Our goal is to share a few resources, links and tools that may be helpful while raising awareness of epilepsy and the challenges it can bring to individuals and families.
Most of all, we want you to know that you are not alone.
We are glad you're here.
HelpfuL + HOPEFul
There are many resources available for individuals and families living with epilepsy. Exploring trusted websites, online communities and social media platforms can be a great way to learn, find supportand connect with others who understand the challenges epilepsy can bring.
Seizure Symptoms
Things to look out for:
Not all seizures are convulsive – there are many types of seizures that a person might experience. Some signs can even appear to be normal behavior and may last a very short time.
Some signs to watch for in children include:
- Short attention blackouts that look like daydreaming
- Sudden falls for no reason
- Lack of response for brief periods
- Dazed behavior
- Unusual sleepiness and irritability when wakened from sleep
- Head nodding
- Rapid blinking
- Frequent complaints from the child that things look, smell, sound, taste or feel “funny”
- Clusters of “jackknife” movements
- Clusters of grabbing movements with both arms in babies lying on their backs
- Sudden stomach pain followed by confusion and sleepiness
- Repeated movements that look out of place or unnatural
- Frequent stumbling or unusual clumsiness
- Sudden repeated episodes of fear for no apparent reason
- Early Detection is Key
- Early recognition and treatment of children who experience seizures is important to prevent further problems. Undiagnosed seizures can lead to:
- Learning disabilities, as brief blackouts make it difficult to follow instructions and impede understanding at school.
- Safety risks, because a sudden loss of awareness in certain situations, (swimming in a pool, climbing a tree) can lead to serious injury.
- Behavior problems, as the child experiences feelings that are difficult to communicate and may act out.
- If you ever have any medical concerns always seek medical advice.
- For more helpful information here is a 3rd party website: letstalkseizures.com
