.
Let's heal epilepsy together
Meet Levi and Gianna, two of the half a million children who suffer from epilepsy in America.
Welcome
We are two mom's of children with epilepsy and other complex medical issues.
We hope this website can be a resource for any person or family of a loved one on their journey with epilepsy.
It is a way for us to share our story and let you know you are not alone.
The more we talk about epilepsy, the more we will raise awareness for this devastating neurological disorder.
Helpful+HOPE
Please use this page as a stepping stone to finding
helpful resources. But don't stop here.
There is so much information out there to help you on your journey. Search key words on your favorite search engine, like Google or on your favorite social media platform like Facebook, Tik Tok and Instagram.
Seizure Symptoms
Things to look out for:
Not all seizures are convulsive – there are many types of seizures that a person might experience. Some signs can even appear to be normal behavior and may last a very short time.
Some signs to watch for in children include:
- Short attention blackouts that look like daydreaming
- Sudden falls for no reason
- Lack of response for brief periods
- Dazed behavior
- Unusual sleepiness and irritability when wakened from sleep
- Head nodding
- Rapid blinking
- Frequent complaints from the child that things look, smell, sound, taste or feel “funny”
- Clusters of “jackknife” movements
- Clusters of grabbing movements with both arms in babies lying on their backs
- Sudden stomach pain followed by confusion and sleepiness
- Repeated movements that look out of place or unnatural
- Frequent stumbling or unusual clumsiness
- Sudden repeated episodes of fear for no apparent reason
- Early Detection is Key
- Early recognition and treatment of children who experience seizures is important to prevent further problems. Undiagnosed seizures can lead to:
- Learning disabilities, as brief blackouts make it difficult to follow instructions and impede understanding at school.
- Safety risks, because a sudden loss of awareness in certain situations, (swimming in a pool, climbing a tree) can lead to serious injury.
- Behavior problems, as the child experiences feelings that are difficult to communicate and may act out.
- If you ever have any medical concerns always seek medical advice.
- For more helpful information here is a 3rd party website: letstalkseizures.com
